On May 15, 2008, I was diagnosed with frontotemporal lobe dementia, also known as FTLD. It is a degenerative disease of the brain's frontal and temporal lobes that, I am told, will not in and of itself kill me. But it will make me less and less able to function over time. I intend this blog to somewhat document that progression. I hope to be writing on it for years to come.

PLEASE LEAVE A COMMENT - doesn't have to be long, just let me know you've been here.


Tuesday, December 16, 2008

Another Diagnosis

I can't tell whether I'm pissed at the medical profession or not. I've been re-diagnosed and it appears I no longer have FTLD, or indeed never did have it. Instead I am now believed to have a rare but treatable disorder known as Hashimoto's encephalopathy. It's so rare that it would seem there are fewer than 100 sufferers of it in the entire United States. Or maybe not. There is a fair amount of misinformation and partial information about this disorder, and I'm having a bit of trouble keeping the facts straight about it. Not least because part of the symptomology includes forgetfulness and low concentration levels.

Anyway, I now have a blog with a few entries in it on a topic that no longer applies. Maybe I'll get ambitious and move them all to a new blog that IS on topic. However, another of the symptoms is a nearly complete loss of ambition and drive to do ANY effin' thing, so - maybe not. I'm a little surprised I've even had the gumption to write this much.

Hey, at least it's treatable. Though there are about a zillion suggested treatments. And at the moment I'm not getting ANY of them.

More when I know it.


BimBeau said...

I've so enjoyed your erudition and its piquant delivery.

Feel free to contact me at 6682009@military.com - would find such an opportunity to converse directly engaging and motivating.

Jack Jodell said...

Rich, I am very sorry to learn of your affliction. You are a bright and good-hearted man and I enjoy reading your comments on my and Yellow Dog's sites. God bless you, and I hope medical science will soon find a cure for what you have!